FOLLOW-UP from the 24-hour Nap: The 24-hour Awake Time. As I said in the previous video, this happens between 4 and 5 times a month usually. The good thing about the awake Days is that she is normally in a really great mood to begin with and by the end of the 24-hour week, as anybody would be, she's kind of rough lol. This doesn't necessarily mean every child with CDKL5 will have this issue, this is just something we experience and I have talked to other parents that have experienced it as well.

Navigating Naps: The Struggle of Following Mom

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Who's faster, daytime or nighttime? #burgerking #bk #fyp #chess #trend

i love sleeping #napaholic | Sleeping

Taking a Nap with My Boyfriend: A Fun Time Lapse